ASAN, The Right to Make Choices International Laws and Decision-Making by People with Disabilities (2016)

The Autistic Self-Advocacy Network’s toolkit discusses SDM and guardianship, and the many different laws pertaining to both in the United States and internationally. The toolkit will help self-advocates, policymakers, providers, and families understand how laws can make it easier or more difficult for people with disabilities to exercise the right to manage their own lives.…

ADACAS, Support My Decisions (2013)

Toolkit designed for use with DMs to facilitate authentic dialogue around decision making and making choices; kinds of decisions (both large and small); consequences and responsibilities of decision making; and practical sequenced material on how to make a decision and the risks and benefits involved. Each section links directly to an area of the website,…

Coalition for Compassionate Care of California, Thinking Ahead My Life at the End (2010)

This manual applies a supported decision-making approach to facilitating discussions with persons with I/DD about end-of-life decisions. Using plain language and helpful graphics, the manual breaks end-of-life decisions down into three areas: making personal requests, making medical treatment choices, and choosing an end-of-life advocate. In its appendix, it includes an easy-to-read, two-page advance directive form…

AJuPID Project, Comparison of legal systems in access to justice for persons with intellectual disabilities (2015)

This report surveys several European jurisdictions’ laws and programs surrounding persons’ with I/DD exercise of legal capacity. Towards the end of the report, it describes a number of forms of SDM that are being used in Sweden, Germany, and the United Kingdom. This brief overview also includes brief quotes from persons with I/DD and psychosocial…

Florida DDC, Charting a New Course Restoration of Capacity Study & Work Group Report (2014)

This multimodal research project employed web-based surveys, focus groups, case file reviews, and point-of-intake tracking to collect information on the prevalence of rights restoration proceedings in Florida. The researchers found that guardians infrequently initiated restoration proceedings on behalf of persons under guardianship; persons under guardianship are unaware of their rights; families failed to understand the…